She has stumped us...

Jocelyn.

We were referred to a pediatric endocrinologist at Seattle's Children's to try and figure out why she is having so many "episodes." Yesterday was our appointment.

We were at the hospital for 2 hours with 2 doctors! It was the best visit ever! They were very friendly, accommodating, knowledgeable, etc. They wanted EVERY detail and were very thorough with her history! I could go on and on about what we learned, what we have to do, etc but I will make a long story short.

The reason we went was because Jocelyn gets "life-like" during her episodes. She has a hard time holding her head up, her eyes start to roll back, she can't walk, won't talk, and is very "heavy." During these episodes her blood glucose gets down to 50-60 (normal being 80-100) Although, there are times that is higher, in the 70-80's, when she has them. When we feed her she "comes back" after 5-10 minutes.

We learned that people that are "hypoglycemic" have very low blood glucose...like 15-20. Not 50-60.So, this makes them think that there is something else.

The plan: We wait for an episode when her blood glucose is between 50-60 and when she is having her symptoms. We have to take her to the hospital for them to run some labs. The scary part is that we can't feed her. We pack her up, drive 15 minutes to the hospital, and demand the lab to do 7 tests. We use those results to see what the next step will be. (I believe that those results actually determine diabetes, hypoglycemia, insulinoma, etc which they DON'T think it is) We have 2 months to do this. If not, they will admit her to Children's and "induce" it by not feeding her until it gets low and then run the tests themselves. On that same note, we had the option just to admit her there for them to induce it, or let us try and do it here. We are hoping to not have to admit her.

THEN, she is being referred to a neurologist to see if there has been any seizure activity. (I believe they are thinking that it may be something more along these lines.)

The most important part is this: Her growth is constant. Her weight and height are both continuing to increase at a nice level. This means that there isn't anything affecting that. So, whatever it is, should be easily treatable. Hopefully.

Thanks for your thoughts and prayers for her...and me...:-)

Rain Boots

We always knew that Jocelyn had a shoe fetish, but never did I think she would take it this far!

She scored some awesome purple, pink, and teal butterfly rain boots for her birthday and she can't go anywhere without them...literally!

On our way to swimming lessons...

While playing in her playroom...

While hangin' out with sister outside...

(who also scored awesome ladybug rain boots on her birthday)

Last Sunday, she refused to put on her white sandals with the little back-less sundress she was wearing for church. It was a battle I chose not to fight and in the end, she got all sorts of compliments on her "style."